Get Involved

Dementias and Neurodegeneration (DeNDRoN)

The Dementias and Neurodegeneration Specialty helps research for all dementias, and for Parkinson’s, Huntington’s and Motor Neurone Disease. We also help research into other rarer neurodegenerative disorders including Progressive Supranuclear Palsy and Multiple System Atrophy. We carry out research for better treatments, more accurate diagnosis and improved care.

The Dementias and Neurodegeneration Specialty team are an experienced group of research nurses, physiotherapists, health service researchers, psychologists, dementia nurses and Parkinson’s nurse specialists. The team all want to give patients the chance to take part in the best research wherever they live in the North East and North Cumbria.

Contact the Dementias and Neurodegeneration team

by phoning  0191 246 7388 (during office hours)

by email dendron@ntw.nhs.uk 

by writing to Clinical Research Network

Dementias and Neurodegeneration (DeNDRoN)

St Nicholas Hospital

Jubilee Road, Gosforth

Newcastle upon Tyne NE3 3XT

We are delighted to answer questions about any of the research studies, and about ways to get involved in research.

Newsletters

Case Register Newsletter July 2016

Huntington’s patient newsletter January 2016

Be Involved

If you are a patient and would like to get involved in research, you could join the Case Register. The Case Register is for people with a diagnosis of Parkinson’s, Progressive Supranuclear Palsy, Multiple System Atrophy or any dementia. We help patients find the right research study for them. People on the Case Register receive regular newsletters about research. Give us a call if you are interested in the Case Register.

If you don’t have a diagnosis of dementia or a neurodegenerative disease you could help research by being a control volunteer. We need age-matched people without the diseases we are researching to compare to the patients in some studies. Please call us if you can help by being a control volunteer.

To be involved in advising us on how we go about research, and what research we do, you could join our Patient and Public Involvement Panel. People on the PPI Panel are asked from time to time to comment about research questions and clinical study documents.

If you have Parkinson’s disease, you could also join the Parkinson’s UK Research Support Network.

JDR_cmyk          People with or without dementia can  sign up to a national website ‘Join dementia research’.  A friend, relative or health professional can register patients (with their agreement of course) on ‘Join dementia research’. People can sign up to ‘Join dementia research’ as control volunteers too. Phone Alzheimer’s Research UK on 0300 111 5 111 or the Alzheimer’s Society on 0300 222 1122 for help in signing up to ‘Join dementia research’.

At the end of a research study, the people who took part in the study are sent a letter of thanks and a summary of the research. It may not be possible to provide the results at this stage as they can take time to analyse. Medical Journals publish research results. Research outcomes are reported to medical charities and at public meetings. See the results of research in the Dementias and Neurodegeneration Specialty by following this link

Research findings influence medical care and practice through the medical press and by recommendation from organisations like the National Institute for Health and Care Excellence (NICE).

Meet the Team

Dr Bob Barber

DeNDRoN Specialty Lead and Consultant Old Age Psychiatrist/ Honorary Clinical Senior Lecturer at Northumberland Tyne and Wear NHS Foundation Trust

Watch the patient case study

Christine became involved in Parkinson's research following her diagnosis of the condition. Christine has been involved in research in a range of ways and is a regular guest speaker at PPI events. Please watch her story:

View all our stories »

Clinical Trials in Dementias and Neurodegeneration (DeNDRoN)

Select a trial from the list below to find out more about what it’s all about and how you can get involved in helping others.

ACDC

People who have Lewy body dementia, either Parkinson’s disease dementia or dementia with Lewy bodies, can have hallucinations. These hallucinations are often visual and may be disturbing for patients. The AC-DC study is the first treatment study aimed at reducing hallucinations.

Brains for Dementia Research

Brains for Dementia Research makes it easy for people to help research by donating brain tissue after death. Research using brain tissue from people who did not have dementia is important too.

AD Genetics in Early Onset Alzheimer’s Disease

The AD Genetics – Early Onset Alzheimer’s Disease research study is for people with a diagnosis of Alzheimer’s disease before the age of 65. Participants will be visited at a time and place convenient for them, usually in their own homes. The blood samples, interviews and memory tests take less than 2 hours. The participant’s partner, carer or family member will be interviewed at the same time.

SHAPED

Study of HAllucinations in Parkinson’s disease, Eye disease and Dementia

SUPErB

123I-MIBG Scintigraphy Utility as a biomarker for Prodromal Dementia with Lewy Bodies (SUPErB)

GAITDEM 20642

A study to assess the memory and walking of people

Investigating skin metabolites as a new way to diagnose Parkinson’s disease

This is a research study to investigate the chemicals known as metabolites found on the skin of people with Parkinson’s disease (PD).

Parkinson’s pen project (PPP): Developing a novel non-invasive aid for early diagnosis of Parkinson’s disease

Researchers at a number of universities across Europe (including Newcastle University) have developed a pen system (the Manus platform), which may help doctors to decide whether someone has Parkinson’s disease. Find out more here.


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