Get Involved

Contact phone number: 0191 223 2740 (24 hour answer phone)

Contact email: Dendron@ntw.nhs.uk

Treatments for dementia are limited. There is an urgent need for more progress, for the sake of all those who have, or will develop dementia. To find exactly what goes wrong in dementia, to understand the link between brain changes and the symptoms of dementia, science needs brain tissue for research. The drugs now available to treat dementia, the cholinesterase inhibitor drugs, were developed through research on brain tissue. Scientists need brain tissue from people without dementia, as well as with, so they can compare brain changes.

Brains for Dementia Research makes it easy for people to help research by donating brain tissue after death. Research using brain tissue from people who did not have dementia is important too. People aged over 65 who do not have dementia or other neurological disease can join the Brains for Dementia Research donor register. They will receive regular phone calls and visits from a research nurse to record their health. People aged over 65 with a diagnosis of dementia can also join the Brains for Dementia Research donor register. A research nurse will visit them every year.

Being on the donor register for Brains for Dementia Research means that, in the event of death, your relative should inform the Brains for Dementia Research nurse. The research nurse will alert the neuropathologist and obtain the death certificate. They will liaise with your appointed funeral directors so families do not have to change their funeral plans in any way.

There are no risks for participants who sign up to ‘Brains for Dementia Research’. It is important that people discuss their choice with their relatives. Being on the ‘Brains for Dementia Research’ donor register is beneficial to members through contact with the experienced research nurses who visit each year. People may also benefit by knowing they are taking action to fight back against the disease.

Recruitment to this study is due to end on 10th April 2018. Information and findings about this study are being published all the time. Look at the ‘Brains for Dementia Research’ website for more information  http://www.brainsfordementiaresearch.org.uk/

Clinical Trials in Dementias and Neurodegeneration (DeNDRoN)

Select a trial from the list below to find out more about what it’s all about and how you can get involved in helping others.

ACDC

People who have Lewy body dementia, either Parkinson’s disease dementia or dementia with Lewy bodies, can have hallucinations. These hallucinations are often visual and may be disturbing for patients. The AC-DC study is the first treatment study aimed at reducing hallucinations.

Brains for Dementia Research

Brains for Dementia Research makes it easy for people to help research by donating brain tissue after death. Research using brain tissue from people who did not have dementia is important too.

AD Genetics in Early Onset Alzheimer’s Disease

The AD Genetics – Early Onset Alzheimer’s Disease research study is for people with a diagnosis of Alzheimer’s disease before the age of 65. Participants will be visited at a time and place convenient for them, usually in their own homes. The blood samples, interviews and memory tests take less than 2 hours. The participant’s partner, carer or family member will be interviewed at the same time.

SHAPED

Study of HAllucinations in Parkinson’s disease, Eye disease and Dementia

SUPErB

123I-MIBG Scintigraphy Utility as a biomarker for Prodromal Dementia with Lewy Bodies (SUPErB)

GAITDEM 20642

A study to assess the memory and walking of people

Investigating skin metabolites as a new way to diagnose Parkinson’s disease

This is a research study to investigate the chemicals known as metabolites found on the skin of people with Parkinson’s disease (PD).

Parkinson’s pen project (PPP): Developing a novel non-invasive aid for early diagnosis of Parkinson’s disease

Researchers at a number of universities across Europe (including Newcastle University) have developed a pen system (the Manus platform), which may help doctors to decide whether someone has Parkinson’s disease. Find out more here.


Latest news from PPI

View all