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Study of HAllucinations in Parkinson’s disease, Eye disease and Dementia

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Why is this study important?

Hallucinations cause significant distress to patients and carers and can have wider implications for the NHS, such as triggering the move to a care home. At present there is no specific NHS service provision, and we do not know whether those that need help are being identified by current service provision.

What do people in this study have to do?

We will arrange to meet you and your study partner at home at 1, 9 and 18 months. We will ask questions about your health, carry out simple assessments on your vision, memory and movement and speak to your study partner separately to find out their experiences. We will telephone you every 3 months over 21 months (5 times in total) to ask you a brief set of questions.

Recruitment to this study is due to end …


A summary of the study findings should be available by …


Clinical Trials in Dementias and Neurodegeneration (DeNDRoN)

Select a trial from the list below to find out more about what it’s all about and how you can get involved in helping others.


People who have Lewy body dementia, either Parkinson’s disease dementia or dementia with Lewy bodies, can have hallucinations. These hallucinations are often visual and may be disturbing for patients. The AC-DC study is the first treatment study aimed at reducing hallucinations.

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Brains for Dementia Research makes it easy for people to help research by donating brain tissue after death. Research using brain tissue from people who did not have dementia is important too.

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The AD Genetics – Early Onset Alzheimer’s Disease research study is for people with a diagnosis of Alzheimer’s disease before the age of 65. Participants will be visited at a time and place convenient for them, usually in their own homes. The blood samples, interviews and memory tests take less than 2 hours. The participant’s partner, carer or family member will be interviewed at the same time.


Study of HAllucinations in Parkinson’s disease, Eye disease and Dementia


123I-MIBG Scintigraphy Utility as a biomarker for Prodromal Dementia with Lewy Bodies (SUPErB)


A study to assess the memory and walking of people

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This is a research study to investigate the chemicals known as metabolites found on the skin of people with Parkinson’s disease (PD).

Parkinson’s pen project (PPP): Developing a novel non-invasive aid for early diagnosis of Parkinson’s disease

Researchers at a number of universities across Europe (including Newcastle University) have developed a pen system (the Manus platform), which may help doctors to decide whether someone has Parkinson’s disease. Find out more here.

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