Get Involved

Adult Autism Spectrum Cohort- UK

AASC - UK

This project is about engaging adults on the autism spectrum and their relatives in research.

At least 1% of adults are on the autism spectrum. However, very little research has been undertaken into the life experiences of adults and older people on the autism spectrum, and how these can be improved.

Who will be able to take part, and what will people be asked to do?

This project will involve the recruitment of 500 adults on the autism spectrum, and at least 500 relatives/carers. We will be including adults on the autism spectrum of all ages and abilities. Parents or carers will respond for people who cannot take part themselves.

We will ask adults on the autism spectrum to complete information about topics such their autism spectrum diagnosis, information about their physical and mental health, and lifecourse information (for example, social support, employment, accommodation, lifestyle choices). We will ask relatives/carers to complete questionnaires too. We will be contacting adults and relatives/carers through many routes – including health and education services, and voluntary sector organisations. All information given will be kept securely by us and be confidential.

Adults and relatives will be recontacted regularly to update information so we hear how aspects of peoples’ lives have changed, and their experiences. For those who want to, there will be an opportunity to take part in other research projects.

We are not a clinical service, and so regretfully we are unable to offer any direct healthcare advice to adults or relatives. However, this study could possibly play a huge role in determining services and supports provided to adults and relatives in the UK, so it is extremely important you have your say!

For more information visit

http://research.ncl.ac.uk/adultautismspectrum/

Clinical Trials in Mental Health

Select a trial from the list below to find out more about what it’s all about and how you can get involved in helping others.

Adult Autism Spectrum Cohort- UK

This project will involve the recruitment of 500 adults on the autism spectrum, and at least 500 relatives/carers. We will be including adults on the autism spectrum of all ages and abilities. Parents or carers will respond for people who cannot take part themselves.

DPIM

Would you be interested in contributing to a research project aiming to improve understanding of alcohol use?


Latest news from PPI

View all