Get Involved

The Childrens Specialty supports the delivery of research studies in Hospitals across the North East and North Cumbria. These studies help us improve treatments and services for children and young people in our region and across the country

We work alongside all of the different specialist teams within the hospitals who look after children and young people with a variety of health needs.  We support children and their families during their participation in research studies.

Our largest research centre for children’ research is The Great North Children’s Hospital (GNCH) Research Unit based in GNCH at the Royal Victoria Infirmary in Newcastle upon Tyne.  Across our region we are a growing team with aspirations to increase the number of studies available to children and their families. Our long term aim is to offer every child who is cared for in the North East and North Cumbria the opportunity to take part in research.

Watch our videos below showing the experience of being involved in research for Sam and his mum.

To read more about research with children go to http://www.healthtalk.org/young-peoples-experiences/clinical-trials/topics and for parents http://www.healthtalk.org/peoples-experiences/medical-research/clinical-trials-parents-experiences/topics

Meet the Team

Professor Helen Foster

Clinical Research Network Specialty Lead

Dr Rachel Agbeko

Consultant Paediatric Intensivist at Great North Children’s Hospital at the Royal Victoria Infirmary

Dr Steve Pratt

Research Delivery Manager at the NIHR CRN North East and North Cumbria for Division 3 (Children, Reproductive Health & Childbirth, Genetics & Haematology).

Mr Kim Hinshaw

Clinical Lead at the NIHR CRN North East and North Cumbria for Division 3 (Children, Reproductive Health & Childbirth, Genetics & Haematology) and Consultant Obstetrician and Gynaecologist at City Hospitals Sunderland NHS Foundation Trust.

Mrs Fiona Yelnoorkar

Clinical Lead at the NIHR CRN North East and North Cumbria for Division 3 (Children, Reproductive Health & Childbirth, Genetics & Haematology).

Watch the patient case study

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Clinical Trials in Research for Children

Select a trial from the list below to find out more about what it’s all about and how you can get involved in helping others.

ARCI

This research study aims to find the relationship between the gene mutations associated with ARCI and the observable characteristics and traits of individuals affected by ARCI.

BOSS

The British Orthopaedic Surgery Surveillance (BOSS) Study is a nationwide reporting mechanism to determine the epidemiology and outcomes in rare orthopaedic diseases.

Eclipse

Should children and young people with long lasting seizures be treated with a medicine called phenytoin or levetiracetam in an emergency setting.

Ignite

A trial to assess the role of intravenous immunoglobulin in the management of children with encephalitis

Genetic Determinants of Kawasaki Disease

An investigation into Kawasaki Disease by looking at the variation of genes involved in the immune system.

HI-Light

The purpose of this study is to test the effectiveness of home-based light therapy using hand-held units and topical steroid for the treatment of vitiligo.

PREDNOS 2

To evaluate the effectiveness of a six day course of daily prednisoline therapy at the time of URTI in reducing the development of subsequent nephrotic syndrome relapse in children with relapsing SSNS.

Registry (RaDaR)

An initiative by UK kidney specialists to pull together information from patients who have certain rare kidney diseases.

Torpedo

This study has been designed to find out whether it is better to give patients with Cystic Fibrosis antibiotics orally or intravenously.


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